From the back office of his
Westview Esso station in
North Vancouver, Karim
Chandani has been working
overtime. Buried under a
stack of papers and several
computers, Chandani has
raised a whopping $2.8
million in just four months
for kids with lupus.
After
his daughter Jalisa was
diagnosed with lupus, an
autoimmune disease that can
be fatal, Chandani says he
was shocked to learn just
how many children and teens
are affected by the disease,
as well as
rheumatoid
arthritis,
another autoimmune disease
with no known cure.
He says
100 per cent of the money
raised will establish a
chair in
pediatric
rheumatology at B.C.’s
Children Hospital.
"It started out being about
my daughter but it very
quickly changed when I found
out about the amount of kids
who are affected," said
Chandani, who was recently
nominated for the 2008 Hope
Leadership Prize.
"So little is known about
the disease and yet so many
kids are affected."
Chandani
says there are about 5,000
children with lupus and
arthritis
in B.C. alone. Lupus can
occur at any age, and is
most common in women,
particularly in the Asian
and South Indian
Communities.
"Statistically women and
minorities are the most
affected," said Chandani.
Sharon Chung, a University
of California, San Francisco
rheumatologist, recently
told
Audrey Magazine that
Asians have been found to
have more aggressive cases
of lupus.
Extremely low awareness
levels among Asian Canadians
coupled with a community
stigma surrounding chronic
illness
means that the disease is
being forced underground,
isolating patients and
delaying diagnosis.
With no
known causes or cures, the
enigmatic disease attacks
healthy tissues, resulting
in redness or swelling,
pain
and organ damage. It affects
each person differently and
can be very mild or
excruciatingly severe,
sometimes causing heart and
kidney
disease.
Chandani’s daughter has been
living with lupus for about
a year. Although she is
coping extremely well, the
drugs given to her have
altered her appearance, says
Chandani, which can be
especially hard on a little
girl.
As there are no research
initiatives in Canada for
children with lupus,
Chandani and his wife Shala
have decided to create one.
It wasn’t long before a
charity was born - Celebs
For Kids.
Chandani’s goal is to raise
$3.5 million to establish
the Ross Petty Research
Chair, named after the
doctor who heads the
rheumatology
department at B.C.’s
Children’s Hospital. With
just $700,000 to go,
Chandani is closer than
ever.
This August, Celebs For Kids
will host two celebrity
fundraising events, a golf
tournament and a night of
entertainment at the River
Rock Casino, hosted by
Edmonton Oiler legend Grant
Fuhr.
"We have three levels at the
River Rock where 700 guests
can mix and mingle with tons
of celebrities," said
Chandani. "We have spent no
money. Everything has been
sponsored or donated and
it’s been absolutely
amazing."
To celebrate the launch of
his charity, this Friday
Chandani will be hosting a
party at the Sutton Place
Hotel.
For more information about
the charity and upcoming
events, visit:
www.celebsforkids.ca.