Williams Lake Tribune

Ten-year-old Sam Wasstrom has been in and out of the hospital since he was
three.

Diagnosed with a form of juvenile arthritis, Sam, who lives in Williams
Lake, is still receiving further diagnoses for his condition, which may turn
out to be Lupus, says his mother Jill Wasstrom.

"He's been sick since he was three and a half," she says. "The stuff he's
gone through has been horrific."

His auto-immune disorder has meant numerous hospital visits, pain,
depression, and "poking and prodding," which Sam hopes no other child will
have to go through.

On Friday, April 17 from 5 to 9 p.m. and on Sunday, April 19 from 9 a.m. to
5 p.m., Sam will be at Save-On-Foods selling wristbands he designed in order
to raise money for the Ross Petty Research Chair at BC Children's Hospital
to help kids like him.

Sam is donating all of the money he receives through Celebs for Kids, an
organization set up to help kids with arthritis and lupus.

He hopes to help find a cure so no other child will need to be a "guinea
pig."

His goal is to raise $2,000 from the wristbands he is selling for a minimum
donation of $5 each to help the organization and its mission to build the
research centre at BC Children's Hospital.

"We definitely need something like this," Jill says.

The Celebs for Kids organization, which is on the web at
www.celebsforkids.ca, was started after Karim Chandani found out his
eight-year-old daughter had lupus.

Since then, Chandani has been working to raise $4.2 million to open the
first Canadian research centre for children and teens suffering from chronic
autoimmune diseases, such as lupus and rheumatoid arthritis.

Celebs for Kids was born after Chandani's friend, Shelagh Boyd, joined the
cause. A waitress at the Shark Club, Boyd regularly encountered celebrities,
so she started recruiting them to the cause.

Before they knew it, celebrities such as actor Gregory Harrison, Boston
Bruins' Milan Lucic, and Canucks' Brendan Morrison joined the cause.

Last Thursday, Sam attended a Vancouver Canuck's game, where he gave the
players wristbands after the game.

A walk is also planned on May 10 in North Vancouver to further help with the
cause.

Anyone wanting to purchase a wristband can contact Sam at 250-398-7888.


Jalisa's Story


Jalisa born in Vancouver, BC May 16th,1999. Diagnosed with Lupus in June 2007. Now, I really cant travel very much! My Lupus was diagnosed in early June 2007! It has been difficult because Lupus to me means that my body always aches and my joints hurt! The medications (Steroids) help my low blood platelets but, make me big makes my body swells! It was pretty funny. One day, after school, I came home and had a bug bite on my leg. Over the weekend it got worse and worse, bigger and bigger! My mom took me to the walk in clinic and they gave me a cream and said that its a spider bite. They also had me do a blood test! About 3 days l after, the hospital called my mom and said for her to take me to the hospital right away. We got to the hospital and they started doing all sorts of tests. They said my platelets had gone really low and there were other problems but more tests had to be done! They still couldnt figure it out! My dad then called different hospitals all over the world and a doctor from the Mayo clinic arranged for me to be seen by a doctor at Sick kids Hospital in Toronto. It was scary! He told us that we would have to do a bone marrow right there and then! It hurt so much! That afternoon ,he told me that I had SLE Lupus! Sometimes I have a kind of pain that feels like a needle going through my body. It could be my arm or any other place in my body. Sometimes in hurts in weird places like my ear or on the tip of my toe. I use this gel that is call Arnica gel.It is a pain reliever that really helps me when parts of my body hurt! You just rub it on. The other problem I have is blood platelets. My lowest count was 13.That means that a cut can make me bleed to death! Normal people have a count of up to 400! My life has changed since I was diagnosed with Lupus. They also put me on medication called Prednisone! It makes me hungry and I find that I always need to eat! It has made me fat and I feel uncomfortable at times with how I look! I have changed so much in a few months.

I even eat more than my dad sometimes and he is way bigger than me! Some people make fun of me. I like the kids in my class who just want to know more about Lupus and they never make fun of me! They like me for me! Who I am! Even though I look different most people still like me for who I am. When I am in the cafeteria, I thought I would be sitting all alone. My real friends at school dont let that happen.They always come and give me company and sit next to me. At recess, me and all my friends like Jojo, Katherine, Aria, Seri, Michelle, Madeline and sometimes Kimia play handball under the covered area. But, when its sunny, it hurts my head and I hate it! I cant wait for my Lupus to go away so I can lose my weight again, be normal again and the doctors said that it may happen!

My dad is trying to help me and other kids with Lupus. he says that if we can find a cure or better pain medications that is not steroids, everyone will be happy; he wants to help open the First Research Centre in Canada at Children's Hospital in Vancouver with a chair dedicated to pediatric rheumatology. It is going to be called the Ross Petty Chair For Research!

There are less than half a dozen such chairs in the world. I cant wait for this fundraiser that he is organizing. I cant wait to see Bertuzzi again! He is always so nice to me. Just like Brad May and Gretzky! I am so looking forward to seeing all the players and having my friend there to help at the event.

written by Jalisa

Devin's Story

Imagine crawling to the breakfast table because youre too stiff to walk or crying because you are in pain after playing two innings of a baseball game . I would like to tell you about a disease I have had since I was 2 1/2 years old.
Arthritis is swelling and pain in any body part. One in 1000 children under age 16 has arthritis. More girls have arthritis than boys. More children suffer from arthritis than cystic fibrosis and diabetes. There is no cure but medication and therapy can help reduce the swelling and pain. It is important to start medication and therapy as soon as you know you have arthritis before your joints get too damaged. Doctors dont know what causes arthritis. They do know it doesnt run in the family and its not contagious.

Since I was first told that I had arthritis, the joints that have been affected are both knees, both wrists, both ankles and some fingers. I have taken a lot of medication to help reduce the swelling in these joints. Although medications can help my arthritis, some can also cause problems like stomach pain, bone pain, slow growth, puffy face, fever, weakness, headaches, kidney problems and liver problems.

Every morning and night I have to do stretching exercises to help my joints stay strong and to keep them moving. Twice a week, I see a physiotherapist who does stretching exercises with me in a warm pool. The warm water helps my joints move easier and feel better. Once a week, I take swimming lessons to help my joints. I also have seen an occupational therapist who made splints for my knees and wrists. I had to wear them at night to keep my joints in a good, stretched-out position.
Since 1994 to July 2001, I had to live with a lot of pain and stiffness. Some mornings the stiffness lasted about one to two hours. I was too sore to finish a game of baseball or curling, which I like to play. Also my ankles would hurt when I stood or walked for a short time, like on field trips and playing with my
friends. Since I started a new treatment in July 2001, most of the pain and stiffness has disappeared. Now I can finish baseball and curling games, walk for a long time on field trips, play with my friends without resting and get out of bed without stiffness. I know this drug can stop working at any time, but right now
I will enjoy being very close to pain-free.
Written by: Devin, 13

Hello Karim;

I am Jen Hayes sister and I just wanted to send you an email to thank you for all that you are doing to raise awareness for Lupus. Jen has been living with this forever and I am so happy that more people are becoming aware of this disease. Jen was always sick as a child and they just kept telling my parents there was nothing wrong with her. Later on when Jen was diagnosed they got her childhood chart where it actually said that my mum was neurotic and was constantly bringing my sister to the doctor for "nothing"!!!!

Jen is a wonderful woman and a fabulous sister who dedicates most of her time to bringing awareness to Lupus and I am so happy that you are doing the same. I am so sorry to hear about your daughter and want you to know that I will dedicate as much time as I can to help you.

Please feel free to let me know whenever you need my help!

THANK YOU from the bottom of my heart and soul for everything that you are doing!!!!! It means the world to me and my family!!

Sincerely,

Christine Hay

RE/MAX Crest Realty (westside)
Tel: 604-732-1336
Fax: 604-264-7442
Cell: 604-715-5101
www.teamandruff.ca


Walk for kids 2009

 


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